Chai Khana

World Hemophilia Day

World Hemophilia Day is held annually on April 17 by the World Federation of Hemophilia (WFH).

It is an awareness day for hemophilia and other bleeding disorders, which also serves to raise funds and attract volunteers for the WFH.

Hemophilia is a serious bleeding disorder in which the blood does not clot normally which results in excessive bleeding. Someone with severe hemophilia may bleed for no reason.

The theme for World Haemophilia Day 2020 is ‘Get + involved’. It is a call to action for patients, family members, caregivers, corporate partners, Haemophilia Treatment Centre (HTC) volunteers and anyone who supports the National Member Organization (NMO).

It was started in 1989; April 17 was chosen in honor of Frank Schnabel’s birthday, a businessman born with severe haemophilia who was the founder of the World Federation of Haemophilia.

The WFH was established by Frank Schnabel in 1963 and has its headquarters in Montreal, Canada.

The WFH is an international non-profit organization dedicated to improving the lives of people with hemophilia (also spelled haemophilia) and other genetic bleeding disorders. It educates hemophiliacs and lobbies for improved medical treatment.

It has member organizations in 113 countries and official recognition from the World Health Organization.

75% of people in the world with bleeding disorders do not know it and do not receive care.

Themes in the past

  • 2018: “Sharing Knowledge Makes Us Stronger”
  • 2017: “Hear their voices”
  • 2016: “Treatment for All, The Vision of All”
  • 2010: “The Many Faces of Bleeding Disorders – United to Achieve Treatment for All”
  • 2009: “Together, We Care”
  • 2008: “Count Me In”
  • 2007: “Improve Your Life!

 

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